The International Clinical Council for FOP was established in 2017 to create a global voice for the best practice in clinical care and research for people who are living with FOP.
The ICC is an autonomous and independent group of 21 internationally recognised clinician experts from 14 different nations, including the UK.
We are grateful for the continued support and commitment these experts give to our FOP community.
For more information about the Council, to read about the members, and for their contact information visit the website.
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