Emergency Help

FOP is a genetic disorder in which bone forms in muscles, tendons, ligaments and other connective tissues.
When treating a patient with FOP, MINIMISE RISK with EXTRA CARE IN ALL SITUATIONS
To minimise the risk of FOP flares and subsequent extra bone growth (which can be unpredictable or caused by trauma), take extra care in all situations.
Avoid triggers such as deep invasive procedures, repeated or excessive blood pressure cuff inflation, and forced joint movement or stress.
Ensure medical care minimises trauma by, for example, using experienced staff for blood draws and reducing the frequency of blood pressure measurements to the minimum required.
However, in all cases: protect the life of the patient as though FOP was not an issue

FOP is accelerated by trauma
Any attempt to remove the unwanted bone results in explosive episodes of new bone growth. Immunisations can also trigger additional bone growth.
Evaluate the emergency and protect the life of the patient as if FOP were not an issue.
Please always follow these emergency guidelines. If time permits, consult a specialist regarding potential risks of any surgical or medical interventions being considered.
Please refer to the International Clinical Council for FOP’s Medical Guidelines whenever time permits.
FOP Treatment Guidelines
Emergency guidelines for paramedics, first responders, physicians, and A&E staff
Emergency Guidelines July 2024
In all cases: protect the life of the patient as though FOP was not an issue
Where possible, follow these guidelines, along with the treatment guidelines. Any unnecessary physical trauma to the patient can cause irreparable restrictions to their body and movements.