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28 February Sunday

Rare Disease Day

28 February 2021, 00:00 - 28 February 2021, 23:59

FOP affects just 1 in 1.4 million people.  This means it’s an ultra-rare disease.  It’s one of the cruellest and most disabling conditions known to medicine.  There is no known treatment or cure although current clinical trials are proving we do have hope in the future.

Share our social media posts on Rare Disease Day and help us to raise awareness and cure FOP.

Date: 28th February 2021