Alanna

My name is Alanna and I was 2 years old when I finally received my diagnosis. I love to play with my toys and play with my brother and my cousins. I am happiest when I am playing in my sandpit in the sunshine. FOP has already restricted some of my movement and has made it harder for me to learn to walk, but I have a walker and I am becoming stronger and more every day. My arms and shoulders have locked which means I can’t pull myself up when I’m sitting on the floor. But I’m an independent and determined little girl and I won’t let FOP get in the way of me having fun and living life to the fullest!